Tuesday, May 14, 2013

We, the Undersigned... Diabetes Blog week - day 2

Diabetes Blog Week



Today's topic...
Recently various petitions have been circulating the Diabetes Online Community, so today let’s pretend to write our own. Tell us who you would write the petition to – a person, an organization, even an object (animate or inanimate) - get creative!! What are you trying to change and what have you experienced that makes you want this change? (Thanks to Briley of inDpendence for this topic suggestion.)


IF I were able to petition anything, I would petition the perfect 504 plan. Yeah, an "air tight" 504 plan. It would cover everything from testing to lock downs and everything before, after and in between. It would be a standard plan, based on your child's disability/disabilities. It would be valid no matter where you lived. It would be binding and non negotiable. It would fit everyone... "not like a one size fit all" plan or anything... more like a "we gotcha covered no matter what plan".  And if the school(s) didn't follow it... there would be serious consequences for those involved. 


I think some of these schools need a wake up call. I think some people need a new lesson in humanity and understanding. I am so tired of fighting for reasonable accommodations. Things that SHOULD be a no brainer are a fight ... Wait! The school does not like to use that term, challenge, everything is a challenge. I call Bull Shit!!! I say if you have disabilities, even if they are invisible, you should be able to get the accommodations you need. Tools to help you be successful in spite of the challenges you face. The absolute last thing we should be given is a hard time... we have enough of a hard time... We don't need anyone to give it to us.


Signed,
Crapstix... I think this just turned into a rant :/





Monday, May 13, 2013

Share and Don't Share... Diabetes blog week day 1



Diabetes Blog Week
Today's topic ...

Often our health care team only sees us for about 15 minutes several times a year, and they might not have a sense of what our lives are really like. Today, let’s pretend our medical team is reading our blogs. What do you wish they could see about your and/or your loved one's daily life with diabetes? On the other hand, what do you hope they don't see?  (Thanks to Melissa Lee of Sweetly Voiced for this topic suggestion.)



I think I am going to have to give a big shout out to Justin's endo on this one... we always get more than 15 minutes with him. If we have questions... he stays to answer them. If changes need to be made... he stays to change them. I have never felt rushed or unheard.

He is, however, very serious. As a mom I appreciate that, but I am also a bit scared of him and I can see how that seriousness could hinder an open relationship between him and Justin later on. Will Justin feel comfortable being up front an honest? Or will he play it safe so that he doesn't get the ass chewing of his life?  

Our endo is very quick to tell you that your doing a good job. I have also heard he is pretty straight forward and/or blunt when you're not. Thank goodness I've never been on the receiving end of that!!

Again, as a mom, I kinda appreciate that. I want someone other than me to tell Justin when he needs to get his shit together. But do I really want that? Should I really want that? OR... should I want an endo that is open with no judgement? Fine line, I suppose.

So if I had to say anything, it would be...
I hope that you are "softer" than you appear. I hope that with all that seriousness, comes understanding. I hope that when you chew a chunk of my sons ass, you do it with compassionate concern and I hope you give empathy when he needs it and tough love when its warranted.

Happy Monday!















Saturday, May 11, 2013

4th Annual Diabetes Blog Week...



Monday kicks off the 4th annual Diabetes Blog week, hosted by the awesome Karen over at Bitter~Sweet.

Click on the banner below to get a sneak peek at this weeks topics and to see a list of all the awesome bloggers who will be joining in the fun.

Thank you, Karen, for hosting such a great event :)




On a more personal note, I am sure going to do my best to blog every day, but no promises... its going to be a crazy week for me. I am going to play the role of a single, working, dmama... YIKES! I think I might even have to go grocery shopping too. Double Yikes!!!! Now before you get a funky look on your face... No, I don't do the grocery shopping. I write the list and Anthony pushes the cart around the store.
Listen... we had to divide and conquer when I went back to work and grocery shopping was on the top of my list to delegate... yeah, we'll call it delegating. I hate it and he doesn't mind it. Win-Win and a holla just for fun!!

Anywho, the Mr. is headed to Ohio this week with his family. Note... his entire family who helps me when he is not around. They will ALL be gone. Help(aka Mr. grocery) and backup plan(aka, my "were in a jam can you help" help)... GONE... ALL-OF-THEM.

THEN, as life does, the curve balls were thrown as soon as the purchase button was pushed on Southwest.com. I get an email about a mandatory training that I have to go into the office for. SHIZ! Justin has tutor that night... good thing I have a lead foot. BOTH of my kids have spring concerts... on separate nights. Leighanna has viola lessons etc etc etc... the list goes on really. I don't think I've had to get dressed this much since I started working at home last summer. Crap stix... I hope I have clothes that fit because it's getting a bit to hot to wear sweatpants outside. Then again... I might be lucky to brush my hair this next week so I may not give two shits about what I'm wearing anyways.

I know, I know... all the single mama's out there are going "stop complaining you witch; its only a week". Believe me, I know I shouldn't complain. And I'm not really complaining, per say, just a "I'm dreading this" vent to help clear my mind.

Now I can go start my "to do" lists. I wonder if I can con Anthony into going grocery shopping before he leaves???

Happy Saturday!














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