Thursday, April 7, 2011

NOT JUST A FAST DROP...

“Anyone can give up, it's the easiest thing in the world to do. But to hold it together when everyone else would understand if you fell apart, that's true strength.” ~Author unknown


You may remember a post I wrote last week about finding Justin alone at school, in a daze, walking in circles. If you missed it, you can read it here.

I mentioned that I had seen him "zombie out" before. I had always chalked it up to a low or a fast drop in blood sugar. That explanation made perfect sense to me.

Out of coincidence... Justin had a neurologist appointment two days after that "incident". It stuck with me because of the fact that I found him wondering by himself. Just in conversation... I mentioned it to Dr. G and of course, he had questions.

He decided that from a neurological standpoint that an EEG would be beneficial, but told me not to worry.

Yesterday, was the day we scheduled the EEG. Justin was a champ and did everything he was told. I was a proud mama.

During the test... the tech asked Justin to breath heavily, in and out, continuously until she told him to stop. During this time she said she would talk to him about elephants and he needed to remember the color of the elephant she was telling him about.


I sat there and watched.

A few seconds after the heavy breathing began, the tech started talking about purple elephants. Then, abruptly, about 15 seconds later the heavy breathing stopped and the lost zombie returned.

Silence filled the room for what seemed like forever. I found out it was actually ten seconds.

All of the sudden Justin Asks "how much longer".
But when she asked him "what color was the elephant"... he just said "what elephant".

As soon as the tech stood up and left the room for a minute... I just pleaded to myself. "Please... Please don't".

When we were checking out I asked how long it would be before we heard anything. I was told a couple of days. Justin and I went about the day and, by some miracle, I didn't think about it again.

Until that afternoon when Dr. G's name flashed up on the caller ID. NOT the usual office name... HIS name.

(Insert
Reyna's F.F.S)

Turns out... Justin has what they call Absent Seizures.

Here's a typical scenario for a child with Absent Seizures: Frank, a 7-year-old boy, often "blanks out" anywhere from a few seconds to 20 seconds at a time. During a seizure, Frank doesn't seem to hear his teacher call his name, he usually blinks repetitively, and his eyes may roll up a bit. During shorter seizures, he just stares. Then he continues on as if nothing happened. Some days Frank has more than 50 of these spells.

I copied the above scenario from Epilepsy.com. You can click on the link to read more about Absent Seizures.


According to Dr. G... during that twenty minute test Justin had "several" of them. They (his at least) lasted about 10 seconds each.

They require medication- which we will start tomorrow.

I just cried. (I also drank a bottle of wine, but we wont discuss that).



I know that there are worse thing in the world. You don't have to tell me it could be worse. But as a mom... anything your child goes through seems like the end of the world.

I don't understand why he has to deal with any more. He has dealt with ENOUGH!

With any luck... Justin will be lucky enough to grow out of these seizures. Unlike D... we can have hope that he will.

28 comments:

Denise said...

((HUGS)) to you and Justin. Glad you found the cause and that the meds will help. Thinking of you guys.

Wendy said...

(((hugging you tight)))

I'm so sorry to hear this news, my friend. I wish I could be there...wish we were closer.

Praying.

Praying hard.

Joanne said...

Seriously??? What is going on in the DOC lately? Why is everyone getting hit with "one more thing"?

I am so sorry Lora. It's just too much, I don't even know what else to say... Sending you hugs.

Andrea said...

Oh Lora...my heart goes out to you guys!!! At least you know what happened to him and what needs to be done to help him. I completely agree with our "D" kids having to deal with more than just "D". It seems that there is always something going on with Cale. I cannot count how many times I have said "why him again?" (not that I am wishing anything on Ryan). Wine helps...wine always helps!! Hang in there, we are all there for you!! (((HUGS)))

Trev said...

My goodness. I hope you are okay, and for the record I would have also drank a bottle (or two) of wine as well. Our thoughts are with you, and I would be asking the same question...I love the beginning quotation. Take care.

Amy said...

Oh Lora . . . . I am so saddened by this news. For you as a mom, for Justin as the one who it affects, for your whole family in the realization of another medical issue. Of course I am glad the tests were conclusive and theire is treatment available, but WOW, you guys have already experienced that with T1D. Ugh. I wish I was there to take you out for a drink. Hang in there sweetie and come in here to vent ANYTIME!!!!!

Diane D said...

Sending love your way and wine if you want ;)

Stephanie said...

Oh Lora...I cannot believe I am reading this. First Joe & Reyna and now Justin. What is going on with our sweet kiddos! They already have to deal with ENOUGH!

I will be keeping y'all in my prayers. Big, huge hugs from Arizona. ((((Hugs))))

NikDuck said...

Oh Lora, I'm sorry to hear this. What a day for "one more thing" for you and Reyna. I am so sad for you both. I'll be drinking some wine for you too. Praying for you all. Nicole

Tracy (The Crazy Pancreas) said...

Praying for you guys! Love you!

Kris said...

You already know I am saying lots of prayers for Justin and for you and keeping you in my thoughts. I wish there was more I could do but I'm here if you need anything. (((HUGS)))

Donna ((Sweet Momma)) said...

I just got done over at Reyna's blog... telling her that I am sitting in chick-fil-a and crying. Still here. Still crying.

((((HUGS)))) my dear friend. You will get through this. Hold on to that hope that you have... hold it tight and you and Justin WILL get through it!

Heidi / D-Tales said...

I'm sorry Lora. I wish I could wave a magic wand and take this away. D is more than enough for one kiddo. Good luck with the medication. Please keep us posted. (((HUGS)))

Reyna said...

Welp, I am tearing up reading this. I love you. And, as a commentor said today, but in a less profane and more eloquent way..."I feel our "D" kids have paid their fucking dues"...one thing..."D"...is enough. NO MORE. But...

LOVE YOU.

Hallie said...

This blows. Seriously. I would never tell you it could be worse. Never. This is just crap. I am so, so sorry. I am so, so sorry that it's one more thing. I am so, so sorry you all have to deal with this. Sending you big hugs. And big prayers.

Jen said...

Lora..my heart is breaking tonight for you and Reyna...it just isn't fair! Your kids do not need that one more thing..Glad to hear it is something that Justin may outgrow and that there is medication to help. Much love to you friend..you are in my thoughts tonight.

Alexis Nicole said...

Twin! I just got on Blogger. I am so sorry, but so glad you mentioned it the Dr, and got an answer. I pray the medication works, and thats thatt!

I wish I could say more. I love you and here if you need me!

Meri said...

I'm thankful you know what is going on, and I'm thankful the medicine that will help him. I'm thankful for you, and your awesomeness that help me get through the day.

You are a blessing Lora. Prayers and super hoping beyond hoping he can will grow out of it!

Love you to the moon and back.

htimm=) said...

Oh Lora! I am so sorry to hear this. You and your family are in my prayers! Love you! Thanks for posting this and keep us updated. (hugs)

Heather said...

Lora,

First I can't believe I wasn't following you! I am now. That is fixed.

Second, as I read your post, I teared up. I know exactly what you are and were going thru. Not another one, please.

Third, I had these seizures. Back when I was a teen they called themdelayed seizures. Mine were the result of a concusion. My first that I figured out was when I was at baasketball practice, one moment I am covering the ball and the next thing I know everyone is down on the other end of the court and my coach is screaming at me! I had them for about 2 months. I have no idea if mine are relevant to your sons. But I can tell you other than confusion from turning off, It didn't hurt or anything like that.

We don't need to talk about the wine, but let me just say been there done that!

If you need anything, even if its just an ear...do not hesitate to call on me! My email goes right to my phone me2ri2l@aol.com

Sarah said...

I stink at making my emotions known - I stink at not cursing about how unfair this all is...
the only tidbit I've got is that one of my Teach For America's sons was dx with these type of seizures the meds worked, but within the school year he was weaned off the meds and didn't have them again. So...I'm hoping that your beautiful son has a similar smooth path of learning about them, finding the right meds and them clearing up on their own. Just hoping :) Take care.

:) Tracie said...

Man....good to hear it's treatable and possibly out growable.
Will keep your whole family in my prayers.
Lift up your face Lora...He can help you all get through this! He can help us all get through anything!

Pam said...

I know it may seem hard to see now, but you WILL get through this. You are strong, smart, and the BEST person to be taking care of Justin. Sending lots of love...

Jules said...

I am so glad now you know. It sucks but sometimes its a releif to have a diagnosis. I guess the highway dreams were a kind of warning? Nobody wants to deal with any more. D is enuf right. I have thought of you guys and said some prayers since your first post. (Please drink as much as you need to cope right now!) BIG HUGS. xx

Amanda said...

I am so sorry Lora...neither of you need another thing to deal with! Sending you and your family love and prayers.

busymom said...

I just found you, but oh gosh, what an awful day! Bless your heart. I can't imagine one more thing, even the testing and waiting on the results, much less a diagnosis. I'm so thankful it's treatable (..like diabetes being "treatable" don't you hate that?).
Praying the meds work, and he is healed. Wine is a good option : ) Doesn't add pounds quite as fast as chocolate. or chips and salsa. or chocolate chip cookies. or cupcakes. Umm..I gotta go make you some cookies! Stat! : )

Tracy1918 said...

Oh Lora, I am so sorry! But I'm glad you found out what is going on. Praying that the meds work and that he grows out of this....

sfincham said...

I'm a little behind obviously...I am so sorry to hear about Justin and the seizures. My thoughts are with you. Loves and LOTS of ((HUGS))

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